Seven days of pain to raise profile of Connor’s illness

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Five men are preparing for seven days of pain to help raise the profile of a rare condition which affects a Crowland teenager.

Connor Wright (17) suffers from Shwachman-Diamond Syndrome, which affects the pancreas, bone marrow and skeleton and leaves him susceptible to infections.

Even a common cold which most people would shake off in a matter of days can see Connor laid low for a month.

It is very rare and most people have not heard of it – but that could be about change as four RAF servicemen are about to join up with Aaron Day, a friend of Connor’s family, for a huge challenge.

They will complete four marathons and three 110-mile cycle rides in just seven days.

Half of the proceeds will go to the Connor Wright Shwachman-Diamond Project at Great Ormond Street Hospital, London, and the rest to the RAF Benevolent Fund.

Aaron Day, a shop owner in Stamford, said: “I first thought of the challenge a year ago and together me and Corporal Mike Gambling, an RAF instructor, have made it a reality.

“The thought of being able to push myself beyond limits excites me and to do this for two amazing charities makes all the physical and mental strain worthwhile.”

Connor’s grandmother Sue Kilby, of Crowland, said: “As well as raising money the tremendous challenge will really help to make more people aware of Connor’s condition.

“At the moment he is doing really well but we can never be complacent because even a minor infection can make him really poorly.”

To support the five in the Seven Days of Pain go to