MP and Spalding family want life-changing medicine made available to cystic fibrosis sufferers
MP Sir John Hayes has joined the fight to make a life-changing drug available on the NHS to cystic fibrosis sufferers.
Sir John's intervention was sparked by the loss of a family friend, a young mum called Jane, who sadly passed away before she could become Godmother to his younger son Edward, now 15.
Among those hoping Orkambi is made available on the NHS in England are the family of Spalding sufferer, Crystal-Jane De-Camps (17).
More by this authorLynne Harrison