Sutton St James family's charity trek came with extra challenges for Eveie (6) who has Trisomy X syndrome
A mum and her three children took on a big-hearted challenge when they walked 30 miles to raise money for Parkinson’s UK.
Lotty Redden (29) and her children Eveie (6), Ellis (8) and Eliza (5), of Sutton St James, wanted to support the charity as it is a cause close to their hearts.
Their grandmother Caroline (Lotty’s mum) was diagnosed with Parkinson’s disease at the age of 38 and has lived with the condition for 26 years.
The challenge was called the ‘Spooky Sprint’ and they had to walk, jog, cycle or sprint the distance in 30 days over October, by Halloween.
Husband Jamie (42) cheered on Lotty and the children, and their one-year-old Cockapoo, Winnie, also joined them on some of the walks.
“We choose this charity as my mother was diagnosed with Parkinson’s before the age of 40,” Lotty explained. "She’s an incredible lady who’s lived with this for many years and amazes us everyday. We really wanted to do something to help other people now and in the future who have Parkinson’s.
“This challenge was something incredible for all the children to achieve,” she added, “but for Eveie it’s come with extra challenges.
"Eveie has Trisomy X syndrome and got diagnosed just before her second birthday. It causes her to have hypermobile joints and low muscle tone. She didn’t begin to walk until she was two years and two-months-old. She has found milestones, from standing to walking to running, skipping and jumping, extremely difficult - but her determination and hard work pays off with the regular physiotherapy she has.
“She's an awesome little girl, so for me, and as a mother, seeing her complete this challenge has been another extraordinary achievement. I’m very proud of all the children. It really has been much harder than I originally thought it would be.”
Trisomy X is a genetic condition. One in 1000 females are born with it - and symptoms can vary, with some people having no symptoms at all.
“Some of the days the weather was very challenging but the support of friends and family was outstanding,” Lotty added. “We received over £300 sponsorship via online donations and over another £300 in donations on our sponsor form. We even had local residents stop us in the street to donate when they found out what we were doing. It was heart-warming the love and support people showed us.”
Parish councillor Jennifer Garbutt and her mum Joyce Salmon sponsored the family, as did South Holland District Councillor Jack Tyrrell, their teacher at Sutton St James Community Primary School and father and son John and John Hoey from Foreman’s Bridge Caravan Park in Sutton St James.
More by this authorZoe Myall